Message from Razorhawk:
A friend of mine, whom some members of the GLHG know as well, asked me to participate in a great charity event for Children’s Hospital of Wisconsin. It is the Briggs & Al’s Run & Walk for Children’s Hospital of Wisconsin, or simply “Al’s Run”. I agreed instantly because I am well aware of the good that this hospital has done. However, several people involved know me and aren’t aware that I am The Watchman. Therefore, I will be participating in this one as my-civillian-self. I have gotten a few other folks who are involved in the RLSH community in some form on board as well. Despite doing this one sans masks, we are hoping that all of you will contribute what you can. Don’t be fooled by the name, the good done by Children’s Hospital of Wisconsin is not limited to one state. Many people come from all over the country for the care provided by this hospital.
Here is just is an example provided by the leader of the team I’ll be walking for:
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For a little background story – our daughter Katie, who is now 3, was diagnosed in utero with hydrocephalus, a condition in which the cerebrospinal fluid does not flow correctly out of the brain, through the spinal cord, and then eventually is excreted from the body. Hydrocephalus blocks this flow from the brain, resulting in increased intracranial pressure, which can quickly lead to brain damage, coma, and if left untreated long enough, death. Hydrocephalus is a serious neurologic condition, and many people with it have life long effects with mental disabilities and motor skill impairment.
Katie was born at Children’s Hospital of Wisconsin , and was a patient in the NICU there. She had a shunt put in at 2 days old which diverts the excess fluid from her brain, and drains it into her belly. She was discharged home from the hospital 2 days later, and has lived an absolutely normal and happy life, with none of the mental or physical handicaps that we were told she would almost certainly have.
Katie’s life was great until January of this year when she began experiences frequent, severe headaches. To make a long, long story a little shorter, it culminated in Katie have 6 surgeries to revise her shunt in just a 6 week period of time this year, from March 31 – May 20. Without her shunt and Children’s Hospital managing her care, Katie could be severely handicapped right now, or even worse. A person with hydrocephalus cannot survive this condition without a shunt and sometimes frequent medical care.
Children’s Hospital is obviously very important to us – they have saved or child’s life and have greatly increased her quality of life. Things could very easily be quite different for Katie. Chances are, if you live in Wisconsin or even Illinois , you probably know some child that was helped through Children’s. This is not just for us and our child, but this will benefits thousands of children throughout the country. Families even travel from throughout the United States and even other countries because the care at Children’s is so awesome.
Here is some info on the walk, and if you cannot attend please donate to our donation site, it doesn’t matter how little the donation is – anything will help. We have an ambitious goal of $1000 for our first year – please help us meet that goal for the kids!
Join us for the 32nd annual Briggs & Al’s Run & Walk for Children’s Hospital Saturday, Oct. 10, 2009.
START LINE: 12th Street and Wisconsin Avenue on the Marquette University campus
Wheelchair: 10:15 a.m.
Only self-propelled manual wheelchairs. Assemble in front of the start line.
Runner mass start: 10:30 a.m.
Elite runners line up at the front of the pack. All other runners, line up according to your estimated pace.
Walkers: Immediately follow runners
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One part that she did not mention is that there was a balance amount of over $6,000 which her family’s health insurance didn’t cover for the multiple nuerosurgeries. Children’s Hospital of Wisconsin wiped it clean so they owe nothing out of pocket. They do the same for many other famillies.
We at the GLHG have also set up a donation page so if you’d like to help out, and we hope you all will, go to:
She has a goal of raising $1,000 between members of her team, but she’s not counting on us. Let’s see if we can beat that.
Message from Razorhawk: